drstockmann
SunFiled under: KDM, Konferanser, M.E., M.E. i media, M.E. på Youtube, M.E.-lenker, Om undersøkelsene og behandlingen
Kjempegod nyheit 🙂
Professor dr. med. Kenny De Meirleir er no med i ei veldig viktig
ME-forskningsgruppe i USA, invitert av to andre
som også er solide «hjørnesteinar» i ME-forskning gjennom mange år: Dr. Derek Enlander og Dr. David Bell.
Mt. Sinai ME/CFS conference – De Meirleir lecture:
Referat fra Dr. Enlanders ME-konferanse på Mt. Sinai Hospital 20.11.11
Konferanse på Dr. Enlanders nye ME-senter 20.11.11
http://www.me-nyheter.info/?p=5548
Filed under: Diverse, Konferanser, M.E., M.E. i media, M.E.-lenker, ME-blogger
Stor artikkel om ME, LP og UNN-konferansen i Nordlys:
http://merutt.wordpress.com/2010/10/02/02-10-stor-artikkel-om-me-lp-og-unn-konferansen-i-nordlys/
Vi som har ME kjenner oss ikkje alltid igjen i beskrivelsen av sjukdomen,
-det er vi etter kvart blitt ganske vandt til…
Live Landmark hadde nok Utbrenthet eller djup depresjon og IKKJE ME:
Live Landmark:
“– Hvorfor denne redselen, dette sinne? Jeg er ingen mystiker
med et budskap med religiøse overtoner som tar livet av
folk, slik de hevder. Som ME-pasient mister du først helsen.
Så livsgrunnlaget. Deretter ryker det sosiale livet. Etter hvert
frykter du for at du mister familien. Du klarer ikke å føle eller
ta imot kjærlighet. Til slutt har du kanskje mistet deg selv.
Når dagene handler om å overleve, og du ligger på en institusjon,
har du et liv da? Viss LP kan hjelpe noen, og det gjorde
meg frisk, så må dette forskes på?”
Kvar i Diagnosekriteria for ME står det at : ”Du klarer ikke å føle eller
ta imot kjærlighet.”????
Internasjonalt diagnosekriterie for ME(Myalgisk Encefalopati):
Canada-definisjonen :
http://www.me-forening.no/index.php?option=com_content&task=view&id=39&Itemid=59
Vi veit at det er veldig mykje sammenblanding av tilstander og diagnoser:
Depresjon:
Utbrenthet:
Når man beskriver utbrenthet, er det tre begreper som er sentrale:
• Følelsesmessig utmattelse
• Følelsesmessig distansering
• Redusert personlig yteevne
http://nhi.no/livsstil-og-helse/livsstil/diverse/utbrenthet-18273.html
Diagnose
Utbrenthet er ikke en egen diagnose. Blir man sykmeldt av tilstanden, står det derfor noe annet på sykmeldingen; for eksempel kronisk utmattelsessyndrom.
http://www.utbrenthet-kronisk-utmattelse.no/utbrenthet
Kronisk utmattelsessyndrom:
http://www.nettpsykiateren.no/article.asp?artID=35
NB: Kronisk utmattelsessyndrom er IKKJE det same som ME (Myalgisk Encefalopati)!!!
ER DET BERRE VI SOM HAR ME SOM FORSTÅR DETTE?????
Mvh Sun
You are kindly invited to an XMRV/MLV seminar to be held on the 28th of
November, 2010 in Oslo, Norway. Come and hear the newest information about
this interesting family of viruses.
The speakers will be:
· Dr Judy Mikovits, Research Director for the Whittemore Peterson
Institute (WPI) for Neuro-Immune Disease, Nevada, USA
· Dr Mette Johnsgaard, Medical Director of Lillestrom Helseklinikk –
Center for the Treatment of Chronic Diseases, Lillestrom, Norway.
In the final hour of the seminar, there will be an extended question/discussion
round. Panel: Dr. Mikovits, Prof. Dr. Saugstad and Dr Johnsgaard. Moderator:
Prof. Dr. Ola Saugstad, Oslo University Hospital, Rikshospitalet
The seminar will be held in English and is open to all types of healthcare
professionals, as well as the public. Patients, please invite your doctor, nurse
or other healthcare providers. Politicians and journalists are also very welcome.
The program:
14:30 – 15:00 Registration, coffee/tea
15:00 – 15:15 Ms. Bieke Verleys, ESME: “The importance of the XMRV story in
general and why research is important for patients”
15:15 – 16:15 Dr. Judy Mikovits: “XMRV and other MLV’s in ME/CFS: Latest
update on testing, results, treatments and research”
16:15 – 16:45 Coffee break
16:45 – 17:30 Dr. Mette Johnsgaard: “Norwegian situation: testing, results,
treatment and research”
17:30 – 17:40 Break: Questions for the panel should be delivered in writing to
Prof. Dr. Saugstad during this time.
17:40 – 19:00 Question/discussion round: Dr. Mikovits, Dr. Johnsgaard, Prof. Dr.
Saugstad,
Place: OlavsGård Quality Hotel, Hvamstubben 11, 2013 Skjetten, Norway
Link to map: http://www.choicehotels.no/choice/en/skjetten-hotel-quality-NO040-en?
tab=0&cid=21351
Date: 28th of November, 2010
Time: 15:00 – 19:00
Cost: 100 NOK (13 Euro) to be paid at the reception desk.
The seminar is being organized by ESME – European Society for ME. To register,
please write to ESME at: post@esme-eu.com and give us your name, country
and occupation. We also ask that you specify if you are a patient or the family
member of a patient.
You will receive a confirmation mail as proof of your registration. Please present
this at the reception desk at the seminar.
The registration deadline is 15/11/2010. Seating is limited, so please register now
to ensure your place.
Kind regards,
ESME team
Filed under: KDM, Konferanser, M.E., M.E. i media, M.E. på Youtube, M.E.-behandling i Belgia, M.E.-lenker, ME-blogger, XMRV
Hei 🙂
Ja, visste at det kom noke spennande 😉
http://www.me-behandling.com/forum/viewtopic.php?f=29&t=1318#p10774
og
http://www.hetalternatief.org/XMRV%202010%20737.htm
Dette er frå Frank Twisk si side (nederlender) men ser du nederst på sida, så finn du den engelske teksten. Han har sett opp resultata på studien veldig tydelig, og utheva det som er viktigast.
«RESULTS ( Prof.dr. med. Kenny De Meirleir og co)
The number of CD3+ T cells and CD57+ lymphocytes
was significantly lower
compared to the reference values.
C4a and elastase activity
were significantly higher
in the XMRV positive CFS population.
Soluble CD14
which codes for LPS in the plasma
was significantly higher
at p < 0.001 compared to the reference population.
XMRV positive CFS patients
had significantly higher
serum IL-10, MCP-1 , MIP-1 beta and IL-8 levels.
Serum levels of other cytokines
(IL-12, IL-1 beta, IL-6, TGF-beta and alpha-TNF)
were not statistically different
compared to the reference values.
Other lymphocyte subsets
showed
no difference from the reference in the XMRV positive patients.
Stool lgA and lgG3
were statistically lower
in the XMRV positive patients.
CONCLUSION
The results of this preliminary study in a limited number of subjects
show that XMRV positive CFS patients have
lower than normal levels of lymphocytes and low numbers of CD57+ lymphocyte subtype
as in HIV.
The absolute numbers of CD4+ and CD8+T cells
were not statistically different from the reference values,
but expanding this study to a larger number of patients is necessary
to make solid statements in this regard.
XMRV-positive CFS patients have an activated innate immune system
(elastase activity, increased C4a)
which could be related to microbial translocation
as their sCD14 is significantly higher than expected;
sCD14 strongly correlates with plasma LPS 1.
Low stool IgA (in some of these 16 patients it was undetectable)
also points towards a dysfunctional mucosa-associated lymphomal tissue (MALT)
in XMRV-positive CFS patients.
Furthermore we found that
these patients as a group have lower than normal lgG3 serum levels.
The cytokines IL-8, IL-10, MCP-1 and MIP-1beta are increased
and might constitute a biological signature for the viral infection.
These observations and others
(unpublished data on serum levels of LPS in CFS patients)
provide evidence for
microbial translocation
being part of
the pathophysiology
of XMRV positive patients.»
Mvh Sun
Director of NIH to open XMRV Conference
By XMRV Global Action
Sat Sept 4 7:03pm
Even bigger news on the XMRV/Murine Leukemia Related Virus front: Francis Collins, Director of the National Institutes of Health (overseeing an annual budget of ~$31+ Billion) will be giving the opening workshop at the 1st International XMRV conference.
He will be joined by Stuart LeGrice, head of the Center of Excellence in HIV/AIDS and cancer virology at the National Cancer Institutes, who was famously quoted in the Wall St. Journal last October: «NCI is responding (to XMRV) like it did in the early days of HIV.»
As patient bloggers have been commenting, this suggests the NIH and indeed NCI are taking XMRV/MLV very seriously indeed.
With Francis Collins’ very visible participation at this conference, the speculation (emphasis on speculation) is that one or both of the following might have happened:
• XMRV/MLV’s have been proven (behind the scenes) to cause aggressive familial prostate cancer and/or ME/CFS/Mantle Cell Lymphoma, and possibly other neuro-immune disorders
• XMRV/MLV’s have been confirmed to be transmissible in blood products
Given the early prevalence rates in healthy blood donors of 3-7% cited by Dr Harvey Alter (discoverer of the Hep-C virus), this ultra-high-level attention is perhaps not surprising. Plus there is the element of potential scandal, since ME/CFS patients have been complaining of profound viral symptoms (and dropping dead from viral cardiomyopathies and rare lymphomas) for decades – while being derided as hypochondriacs.
With the personal attention of the NIH director, will research funds will be prioritized to XMRV/MLV research and clinical trials?
The program can be downloaded from here.
Vitenskapelig behandling av M.E. med god effekt 